This is a letter Kedzie wrote to her doctor more than a year ago.
Unfortunately, if she wrote one today, it would be pretty similar.
This is why we can't wait to have a new treatment option.
The kids all survive by drinking an amino acid formula.
We can't have traditional cakes, so we come up with alternatives.
This was a Cinderella cake made out of ice.
Owen and Zackary had a SNOW cake with food coloring for their first birthday.
It was a big hit!
Zoe had a flower cake for her 4th birthday.
